Goju Ryu Karate with Ehlers-Danlos Syndrome and Multiple Disabilities
Monday, January 6, 2014
Internalizing Karateka Tools
Karate, which (more or less) means "Empty hand," does not rely on things--neither weapons nor tools, books or other people. I wish to become internally satisfied with who I am, and to become less interested in what I have. With the loss of my wife, our dog, both cats, and our plans for a child, I am learning the very painful lesson that things can and will change in the blink of an eye, even if I am no longer that abused child who would have to move out of the house at 3am when my parents fought and things got raw. I will need to rely on my adaptive skills and learn to better receive and roll with change.
Preparing a dojo-style space for myself at home will mean letting go of a lot of other hobbies. (A *lot* of other hobbies....) I will whittle down my painting and art supplies and donate the rest. I will carve out some time to complete projects for which I have the materials so that I can get rid of the scraps. I will identify people who might like my extra supplies, and share what I have. I'm off work today, so that can be one of my intentions. My other intention is to finish some coursework because I've got new (continuing ed) classes starting already.
Even without so many belongings I will still have the skills, and I can get the supplies again if I need to. It will make me happier overall to double the good I can do -- give someone something, and give myself some nothing (i.e., some empty space to practice karate).
As for the gi, I have a lot of tactile defensiveness because my skin is extremely loose and painfully sensitive (Thanks, EDS). My gi moves with me, whereas regular clothes don't. I try to only wear my gi to the dojo because I always want them to be clean. I tried wearing sleeveless shirts and workout shorts but my skin is too loose to be exposed to air, especially since it breaks down when I sweat if I don't wipe it down right away. It's like taking care of bad leather. But it's my leather, and it's the only suit I got for my birthday. ;) You can see how the simplified mental state thing is a real challenge.
I ultimately want to buy some better gi (the ones I have are very light and were 20 bucks a piece) but right now is a time to reduce what I own, not increase. I am Catholic and today is Epiphany, the day the Three Wise Men supposedly reached the manger and gave their gifts to the baby Jesus. I will see about reflecting on what gifts I bring to this world, and maximizing the ones I do the best. Even milk knows to let its cream float to the top.
Today's theme: Less is More.
Gassho.
Sunday, January 5, 2014
Special Guest: Hai-O-Judo
To see this kata through my EDS eyes it was very overwhelming, but also inspirational. Is there anything in this kata that looks safe for a medical zebra? I don't know the answer, but we may all be safer if we learn to fall and tumble properly since it's a daily occurrence. Those of us in wheelchairs are not excused from needing to learn how to fall, as curb cuts become more prominent they become less ADA-compliant. Years of technique are on display in this wonderfully polished demonstration.
How can I translate this generous display into something I can use as a zebra and a karateka? Here are some ideas to get started:
- I may fall often. I will get hurt less and recover faster if I fall properly.
- I rely heavily on my vision for information about what's going on around me. If I standardize the ways in which I move I can keep better track of my body's location in space (the word for this is proprioception, which plays nicely with range of motion education from a good physiotherapist).
- Some places on my body are weaker than others. Learning to shift my weight translates to better overall balance.
- Practice on a soft mat is no match for real life, so I need to learn as best I can from both environments and their many opportunities for experience.
- I must know my environment, my surroundings, my functions and my limits, and learn to work within them.
Zebro Warrior Challenge!
The main concepts with which I am working are:
- Strength
- Endurance
- Stamina
- Strength
- Work up to and sustain physiotherapy, 3 reps of 8, 3x/wk, with 1lb. weights
- Endurance
- 5 of each kata I know, two at full speed and power, 2x/wk outside of karate class
- Stamina
- Identify 3 easy energy, low/easy vomit foods that can sustain me when I am too sick to prepare meals
- Eat dinner every night before 7:30pm
- When well
- 5x5 exercise plan: 5 min 5x/day
- Mokuso (meditation)
- Bed at 10:30pm
- When unwell
- Stay hydrated
- Stay up and at 'em as much as necessary, but allow time to heal
- Stay connected with my support network
- Mokuso (meditation) and reflection during rest, positive thinking
- Keep blood pressure above 100/55 with salt, broth and saline
I love karate
Martial Arts and Philosophy
Ever has there been an argument on being intelligent versus being well rounded.
Growing up the way I did, I am only intelligent because library books are free. Libraries had heat and clean, running water, while I didn't always live in a place that had one or the other. It took survival skills: learning where those resources were, and getting those needs met, in order to access the font of free information. Libraries were also open until 9 p.m., which was about the time that my mother could pick me up after her third job. I don't mean this as a sob story, but it's important to share my background. If the library had not been an option, I might have hung out at a deli (though I wouldn't have been able to have bought anything) or another place that met my needs, but which may not have been a safe or developmental environment.
The library where I spent my time was right across the street from my school, which made it easy to access. The front entrance of the library is where all of the kids hung out to smoke, doing their drinking and drugging right in the saddle of priceless opportunities to become better as people. Twenty years later I am certain that those who are not dead are mostly working dead-end jobs to feed the suffering life of addiction. I could have easily been among them had it not been for the fact that they regularly picked on me and followed me to beat me up. At the time I had no idea how to fight, but I had fingernails as sharp as claws that rendered it simple to sustain a grip on flesh that planned to hurt me. As an adult I regret those fights.
I was the kid who dashed into corner stores and hid all afternoon from the pack outside, until I could call somebody to come and get me, or some merciful adult offered me a ride home. In hindsight it was a very bad idea to accept rides from strangers, but it was a tough place and time, which required faith. I still have that faith.
Why did it seem I made enemies wherever I went? Well, I was overweight and they were bullies. I moved constantly, so I was chronically the new kid. I never had time or energy to establish myself as no-easy-target, to make friends, or to identify safe spaces.
This book, "Martial Arts and Philosophy," explores character development in relation to self-defense. As we continue to grow the mechanisms that may have worked for us at one time might now be in the way, useless or ineffective in an adult world with adult rules. Learning about technos, pathos, ego, and a bunch of other fancy Greek or Latin words changes the look of the battle. I'm enjoying the book but thoughts of my past come up when I'd rather be thinking about the present moment or the future.
The key is balance. Learn from the past, accept now, and choose wisely for the future. I think.
Why The Goju Ryu Karate Style Works For Ehlers-Danlos Syndrome
Read the warning!
I practice Goju Ryu karate. It's close-up work (no hyperextension) that focuses more on personal development than on combat. However, both components exist and the discipline is not naive to the fact that everyone on earth has limitations.
As karate is a tool for self-defense I started studying it because I appear an easy target with a cane, crutches or my wheelchair, especially since all of those can be taken away and used against me. However, a kick with an aluminum unloader leg brace on or a rake across the face with silver ring splints makes me feel much more empowered.
THIS IS THE WARNING!: THESE AND ALL DEFENSE TECHNIQUES TAKE PRACTICE AND SUPERVISION UNDER A MASTER. ONCE YOU ENGAGE SOMEONE IN A FIGHT IT WILL NOT END UNTIL ONE OF YOU IS SUBDUED OR DEAD. EXPECT TO SPEAK WITH AUTHORITIES AND UNDERGO INVESTIGATION. IF YOU WRONGLY HURT SOMEONE NEITHER THE LAW NOR THE DOJO WILL PROTECT YOU.
Always act with the least amount of effort required to neutralize the situation and end the conflict. The best way to win is not to get into a fight at all!
That said, my dojo works tirelessly with me until we have adapted moves that maximize my strengths and protect my weaknesses. It's the most satisfying interaction I have ever had with my body, which is much more powerful and amazing than I ever thought it could be. I am no longer quite so easy a target.
Well beyond that higher sense of self-efficacy (but not too high!) is the growing sense of intellectual and emotional stability I gain from practicing Goju Ryu Karate. As long as I continue to live within the precepts of humility and self-awareness, as defined by my dojo, IOGKF, my personal belief systems, my education and my medical team, I conquer my daily perceptions of what a limit looks like, which matters more overall than a hypothetical fight with an unknown assailant.
If I've ever agreed with the axiom, "you are your own worst enemy," it has been in the times when I have felt most hopeless about what my life might be worth as my health cycles from manageable to intolerable. The consistency of Goju Ryu practice is not within my body because my health is inconsistent in all ways. Rather, the consistency of Goju Ryu practice is in my mind, my resolution to be aware of the very moment I am in, for every movement to be saturated with effort. Ehlers-Danlos Syndrome requires the same dedication, a best effort no matter how corrupt and unfair the fight. How blessed I am, to have this fusion, amid all the other fusions I can expect to have in a lifetime....
Don't get me wrong: EDS is hell in the dojo. It's bloody, vomity, sweaty, clammy, fragile, slimy, oozy, and other disgusting, undesirable things. I throw up almost every time I practice, or at least walk around refluxing for the rest of the night after practice. But I have only been practicing for a year. I am still discovering what limits are real and must be respected, as well as what limits are perceptual and wanting for care.
There are times when I go all out, feeling like I should at least get to have a little fun if my body is a sinking ship. Sometimes it works, sometimes I'm on the couch for the next four days. But that's a conscious decision I make, and I pay for an hour of freedom by giving my body the rest it demands in-kind. Those "couch days" happen anyway, but at least I get something out of it this way.
Saturday, December 21, 2013
2013 in Review
I have come to enjoy sitting in my car, surfing the web on my phone, waiting for my body to calm down so I can drive home safely from karate. I run fluids, drink water, catch my breath, wipe my face, and just sit peacefully for a little while. This is also usually the time I blog, while the feeling is fresh.
Randori is a very slow, controlled spar. The moves we make need to be extremely gentle, and no contact should be audible. Randori is a space to practice technique. It's essential. I am very unfocused during randori because I am primarily thinking about not injuring myself. Moving slowly means more energy, more muscle tone, and quicker fatigue. During a fight I would be dead meat.
Feeling brave, and not wanting to waste the last class of 2013, I practiced break falls with the class. Left, centre, right. I learned pretty quickly that nothing is more important than protecting my head.
Break falls are something that I really plan to master, as every step is a fall risk when you have EDS. Falling safely is the best thing I can train myself to do because it is simply an unavoidable part of life. While it would be nice to not fall at all, such is unrealistic.
We did a few new and challenging drills today. As I struggled to keep up I realized that I was still in fact keeping up. What an epiphany! And how humbling, that I have been supported throughout. I was overcome with grief that my wife has given up on me, and her entire family is gone from my life, my support system. I felt so lost in realizing that, although they have all gone, I am not myself lost. I have followed my Sensei's directions, listened to his advice, and held the dojo more closely in my heart than any place I have ever loved, including my home town of Buffalo.
Here are some of my biggest successes in 2013:
-Moving from 9-kyu to 7-kyu
-Getting off IV fluids during class
-Getting through almost an entire class without stopping
-Learning to adapt movements according to pain and tolerance, without compromising technique
-Learning Geki Sai Dai Ni, Sanchin and Saifa kata
-Connecting with other karateka online
-Attending outdoor events with my dojo
-Making new and wonderful friends
-Making karate a priority
Something happened between my 8-kyu and 7-kyu belts. I have changed. My body shape has changed dramatically, my self-acceptance has kicked me around a bit and I've learned to cope. Karate has become a much more serious practice. Every decision I make in life is based on how it will affect my performance in karate.
After my wife left I started looking into moving back to Buffalo, where I got my start in karate, as with life. But my Sensei is a father to me, and one of my best friends. What is a real father, but a humble man, aware of what he can and cannot offer to the world, who spends his top efforts on the impact of love on impressionable minds? What, but the impetus behind safe and healthy decisions in the darkest times that help a vulnerable person emerge stronger and better? I hesitate to write this, not because he has not been all of these things, but that my biological father was the bleakest opposite.
What is a Sensei, but the same? Either way, there is plenty of kicking and screaming.
Everyone in my dojo is such a pleasure to work with. I love every last person in my dojo, I feel part of a family. How could I leave? I need to stay here and become what I have set out to be.
Regarding EDS, I'm baffled: how could medical school have been too high a benchmark, but karate so approachable? My only hypothesis is that, at the dojo, I adapt in any way I can, and my karate family works with me. Med school is far more competitive and exclusive, to the detriment of people with disabilities who could really do something fantastic if they had better access. Now that I am no longer planning for a family I often wonder whether, after my first black belt, might I actually become well enough, able to endure enough, to attempt school again? What might the prognosis be for a medicine career if I were to become stronger and healthier? Will the zebra monster still get me? Is there anything worth fighting this hard for if not my dreams?
At the loss of my wife and our plans for a child I have realized that the best person who will always be there for me is my future self. I had better get ready to meet that person. They are much stronger than I am, and I want them to be proud of what I did on the way to meeting them. I did not break my wedding vows, I have not given up on faith, and through the grace of hundreds of people--literally hundreds--I have not given up on myself.
The holidays are killing me. This is my current opponent. It's great to say all those things I just said, but I am still grieving tremendously. My friend accurately described this time in my life as "fucking brutal." It's even so hard to pray that I just stick to my school's Dojokun:
Through discipline, strength and humility, I will strive to bring out the best in myself and others. I will use common sense before self-defense and never be abusive or offensive. I will strive to have patience, kindness, gentleness and self-control.
Mokuso yame. (Meditation complete.)