Goju Ryu Karate with Ehlers-Danlos Syndrome and Multiple Disabilities
Monday, September 27, 2021
On Karate, Pants, and the Flow of Teachable Interventions
Tuesday, December 29, 2020
On Static vs. Dynamic Exercises and Stretching*
"If you can't explain it you don't know it well enough." -Einstein
On Static vs. Dynamic Exercises and Stretching*
- Given
- When the muscle must contract it's happy to do its job, even if that job is a little tougher because of instability.
- When the muscle must relax, those fibres have no idea where to stop because tendons aren't stabilizing or providing usable feedback. So, the muscle is inclined to remain contracted: "Any time now, tendons.... Guys?"
- Interventions: milieu approach, e.g.,
- Isometrics give the muscles a chance to practice both strength (muscle's ability to contract)
- Short, sustained reps for tone (muscle's ability to remain contracted), and
- ...also releasing and relaxing in between reps (except they suck at relaxing).
- Manual therapies aid in the physical release of muscle fibres which can only relax passively.
- Pharmacology aids in the chemical release of muscle fibres, which are chemically gated by extraneous sympathetic activity, hormones, diet, exercise, psychology, family hx, etc.
- Things I couldn't fit elsewhere
- Timing - time of day/month; interventions before/after activity; last meds, food, hydration, electrolytes
- Psych - last boost of oxytocin or dopamine; last interpersonal reaction; psychological flexibility; emotional regulation; cats?
- Environment - weather; climate; physical safety risks; fall risks
- Adaptive equipment - tapes; braces; splints; mobility aids, environmental mods
- Support - care team; community members; friends; family, and access to them all
- Misc - what else is hurting (and what isn't!); energy levels; cognition; quality of above factors
- If a muscle group isn't working right, check the opposing muscle groups.
- Ongoing "learning opportunities" (that aren't necessarily functional goals, but are more qualitative)
- Emotional endurance when things look bleak for a long time
- When I get sick, any of this knowledge that isn't rote goes out the window.
- Prevention and managing crashes (exhaustion, injury)
- I forgot how to know when a muscle is fatigued vs. exhausted, and when that's a useful vs. hazardous.
- WTF, diet/guts?
- Consistent exercise program
- Managing kinesiophobia and coping without a port like a freakin' boss
- WTF, mind/body connection?
- Communicating with providers succinctly ;)
- Things to remember
- "If you can't explain it you don't know it well enough." -Einstein
- I didn't come this far just to make it this far
- I must rest when my rampage is over
- Didn't cause it, can't cure it, might bitch about it, can endure it.
- Nourish to flourish
- Take your meds. Your doctors know they're not prescribing Jolly Ranchers. (that's mine!) :)
- Sometimes to let it heal you have to stop fuckin' with it. (also mine) :)
Wednesday, September 9, 2020
Zooming In On My Progress
Online learning is getting to me. In karate tonight over Zoom I tried Sepai kata for the first time. I miss my dojo. It'll be interesting to see how my body tolerates karate with no port and overall reduced activity after the pandemic ends. I look forward to building back up because looking back won't do me any good.
I've been in physiotherapy for a year and a half now since sepsis ended. I've been out of the dojo since before the pandemic hit the United States, where I live.
Learning karate online has been a lot of fun because it's different and I get different things out of it. I can turn the volume way up on my Sensei's voice, for instance, whereas in the dojo I'm almost totally deaf. Learning online I can write notes down and scribble out my questions and their answers. I can rest, add a fan, hydrate, and manage blackouts more easily. The cats are distracting but that's only because I want them to meet my dojo family.
It's frightening that my body has deconditioned in so many ways because of sepsis. My muscle memory is carrying me further than my actual memory in some cases, and in other cases I'm choked up from drawing a blank.
My Sensei is extremely generous with my schedule and my abilities. He has things he wants for me and I have things I want for myself. At the end of the day we're glad to be alive and we have faith that this is the foundation for anything else we can imagine to come true. :)
Sepai, though, which is thought of as the oldest kata, has a lot of moves in it that are new to me. It looks like Sepai bunkai might be easier to perform than the kata itself (at least, kihon bunkai).
I'm frustrated most moments of the day with the pain, which is a lot worse, a lot sooner. Pain control in the U.S. is a strange racket. With Ehlers-Danlos Syndrome it is unrealistic to expect that one may ever be completely out of pain. But it is realistic to expect that I can learn to defend myself. I don't need every kata to be lovely. I don't need every bunkai to work. I need to practice and ingrain a few solid techniques that will work for me in different situations against different types of people. I choose to see my life as worth defending. There are many people in my life I wish saw themselves that way, but I can only control myself and invite others to join me in the adventure, in the work. And boy, is it work.
Eventually, everyone gets seasoned at working toward or fighting for something, so long as we do not give up and check out. And even that is another type of fight altogether worth besting.
Sunday, August 9, 2020
Saifa Kata and the Clavicle Strikes
Wednesday, May 6, 2020
In Defense of Self
Saturday, June 22, 2019
Tai Sabaki and Shifting Directions
Tai sabaki is a shift but it is not a final destination, you have to keep moving.
PT didn't clear me for karate this week so I'm watching videos of Higaonna-Sensei. My goal is to find one physiotherapy modality that will help me develop the functional muscle movements and stability to perform one thing a little better than before.
My focus has landed on tai sabaki, body shifting, which can also be translated as body management. Defensively, tai sabaki is used to move quickly out of the way and often includes facing a different direction.
Since my last three hospitalizations I've had to dramatically switch directions in my life. Switching directions shifts one's vantage point, which allows for refocusing. In fact, it requires refocusing, if you're going to get anything done. Tai sabaki is a shift but it is not a final destination, you have to keep moving.
The hips drive tai sabaki. The more stable your core, the better the control. Faster, stronger, easier, smarter. Less easily fatigued. More readily engaged.
PT has been incredibly hard and slow to progress. I feel less likely to fall but I'm still too weak to do a number of functional tasks. For instance, I can't go out to buy groceries and then also put them away when I get home. It has to be done in steps with rest in between.
With tai sabaki you have to stay relaxed, "not too busy", as Higaonna-Sensei explains it. If you get anchored down you can't move or change when you need to. My PT is good at changing directions and finding new approaches. It's not easy work to manage my frustration when a task doesn't work out; a quick shift of focus keeps my time in PT productive and developmental, even if it's not the original task I set out to accomplish.
The goal is to get through, not to land a particular punch. That's why you have to be able to shift, and to practice all different kinds of things. A little at a time, all those little efforts add up to the win.
https://youtu.be/8Ru-fQ10c3Q
Recently I had a nurse evaluation, one of many. "Staying alive, is that what your goals are with your doctors right now?" she asked. Yes, that's the primary goal right now. But it's leveling off and the shift is toward recovery and functional goals for Activities of Daily Living (ADLs). Karate isn't on the list as a method right now, even though it involves exercise. But that doesn't stop me from asking for clearance to go each week. That's the direction I want to be facing, even if I have to shift now and then.
Saturday, March 10, 2018
How Young is Too Young?
Meanwhile, they continue to develop the maturity and awareness that it takes to have the character of a black belt. Their classmates look up to them as role models for technique and character. Their Senpai (senior karate practitioners) depend on their energy and generational commonality to motivate the adults and to connect with the younger students, respectively. In my humble opinion, too young is not an issue with the trainee, but with the trainer.
Even the Bible tells us that youth is not a barrier (I Tim 4:12*). As the youngest of three I was often excluded from activities because I was too young. It has forever isolated me from my cousins, who are all at least ten years older than I am, which I deeply regret. I missed out on a lot, and I never quite managed to pick up the pace and catch up to wherever I suppose I could have been by now. I've had to learn to let that go, and to manage my pace, because Ehlers-Danlos Syndrome does not allow for controlled burns of energy without at least double the recovery time of an average person. Any less recovery time bears consequences, like depleted energy stores, internal organ dysfunction, or increased dislocations due to fatigue and physical stress on the connective tissues.
It will surprise me if I ever see myself able to pace myself--my body's abilities and limits are moving targets. All I can do is push for early opportunities and early interventions. This does not mean that one should place a child under tremendous pressure to perform a task, whether it's karate, piano, maths, or anything they don't want to do. Encouraging and giving support are okay. Force is not okay. I don't know that "too young" is a thing. Too old isn't a thing in our school. Too disabled isn't a thing in our school. We work with what God gives us.
Thank you for joining me here in my blog today.
Be well.
*1 Timothy 4:12 King James Version (KJV) 12 Let no man despise thy youth; but be thou an example of the believers, in word, in conversation, in charity, in spirit, in faith, in purity.
Friday, October 20, 2017
On the Balance of Kata, Bunkai, Kumite, and Iri Kumi
A facebook thread of friendly "chest thumping" got unexpectedly philosophical with questions about who is practicing something martial and who is practicing art.
- Kata - a series of movements commonly referred to as the textbooks of karate
- Bunkai - ways to use movements from the kata in fighting
- Kumite - "grappling hands"
- Iri kumi - free, controlled exchange of technique, often continuous hard contact
- Where is there room in how martial arts is defined for different people--from within and from without?
- Are people with disabilities who can't regularly practice iri kumi, then, only practicing an art? Is there room (and there may not seem to be) that it may also give them a fighting chance?
- Everyone is fighting a battle, and people with disabilities are at constant iri kumi vs. life. But so is everyone else, so how is our existence framed when viewed from the non-martial arts lens?
- If I didn't have so many projects already I would take time to to look through my materials and see what Higaonna-Sensei has to say directly about kata, bunkai, kumite, and iri kumi. Beliefs grow and develop over time, like it or lump it, but it will be helpful for me to keep looking both back and forward. Any particular points of interest?
- My Sensei, who took me on and we made a plan to be safe; who requires that I (we) understand the techniques as they were written for able-bodied majority, and that I (we) find adaptive ways to perform techniques effectively at any functional level: http://www.warriorsofgracekarate.com
- Higaonna-Sensei, who remarked that it looked like I was having fun; who took time to make suggestions about how he would like to see kata and techniques performed. https://en.wikipedia.org/wiki/Morio_Higaonna
- The ever-growing number of karateka with disabilities in my dojo, which we all celebrate with joy that we can be such a place where all are welcome.
- John Marrable-Sensei who paved the way as a Goju Ryu karateka with a visible disability and looks to be absolutely lethal: http://johnmarrable.com/self-defence/
- Ikkaido Federation http://ikkaido.com/
- Olando Rivera's Warriors for Autism: http://olandoskickboxing.com/
- SuperCelu, my hero: https://www.youtube.com/watch?v=q8cygU1x6RM
- Andrea Harkins, The Martial Arts Woman, who featured my narrative in her first anthology: http://www.themartialartswoman.com/
- Chris De Wet-Sensei, who helps me face the reality that not all experts will have the answers I need, and that I have a responsibility to find those answers for myself, which will empower me to help others grow: https://www.youtube.com/watch?v=nSNDxjADH1E
- Michael Downs-Sensei who helps me focus on helping others grow by acknowledging both my disabilities and capabilities: http://defensiveartsdojo.com/
- Me (here I am! Hi! I did think of myself.)
Saturday, August 26, 2017
Push The Bag
We do an exercise with the little kids where they have to push the bags. We adults hold kick shields in front of us, the kids have to push us up and down the dojo. When they "get stuck" (i.e., we resist), we encourage them and laugh with them, or gently cajole them, whatever they need. When we make huge progress (i.e., we take several steps backward so they feel like they got a really strong push) we celebrate and congratulate.
Push The Bag one of the more time-consuming activities, but it's easily one of my faves because we are encouraging them the whole time, no matter what happens.
We encourage one another in the dojo no matter what happens. It just so happens that during Push The Bag we get to do a whole lot of it, one-on-one, which really improves our relationship with that one child. It's special to me.
Nothing big and profound today to write about, just this nice thing.
Saturday, January 28, 2017
Higaonna-Sensei's Time
I dreamt that Higaonna-Sensei visited my dojo on my testing day. He looked so healthy, happy, and energetic that I kept my nervousness about testing in front of him under control because staying calm and collected in times of conflict is his #1 lesson.
In my dream I passed to my 2-kyu, but he had much to say about what improvements I needed to make. He gave me a technical analysis of what to modify so that my disabilities weren't in the way of my efficacy. He a gave me strict feedback about where I was clearly getting in my own way for fear of injury or fainting.
How I wish I could remember anything he'd said! We spoke mostly in Japanese and I was preoccupied with translating, and with not getting overwhelmed by how generous he was in his time with me, when there are so many people who would kill for that kind of time with him. The only way I could focus was to know that the only way to honour those people was for me to focus, work extremely hard, and to do everything I knew to make Higaonna-Sensei happy with his student. I received a glut of his time and attention.
---
This has got to be, in part, a manifestation of how I felt during MCF2014 in Tampa, Florida, USA. I'd had a number of difficulties and was driven to tears several times from the complications.
On the first morning of training I had accidentally come to black belt training. I arrived late, so I wheeled to the back and parked my chair against the wall, doing gentle juunbi undo (karate warm-ups) and trying not to draw attention as the karateka in the wheelchair with lights on it. Nakamura-Sensei politely informed me that this was the black belt class and I'd read the schedule wrong, but he invited me to sit and watch, which I did, soon finding myself a fish out of water. I was 5-kyu at the time, a blue belt.
The day before I found myself sitting in the dining room of the hotel at the table next to the senior instructors. Higaonna-Sensei and I faced each other from our respective tables and exchanged informal head bows, with smiles throughout our meals. I knew who he was and now I knew he was curious about who I was. At the time the only other wheelchair user I'd ever heard of was John Marrable-Sensei in New Zealand. I'd only seen Marrable-Sensei in pictures, but I knew he was out there in the big world, and from his representation I gained infinite gusto about representing myself in my wheelchair to break barriers and stigma.
Within seconds of Nakamura-Sensei's invitation Higaonna-Sensei walked up to me, cutting right through the lines, all the way from the front of the class. He did not rush, and his face was neutral. He did not look at other students as he walked, but came straight to me. We bowed. With no delay he held out his hands. They were covered in scars, knobs of arthritic and glycated tissue, and dry patches where I presume blood and water could no longer compete with the chronic assaults on the capillaries that carry nutrients to the surfaces of his hands.
"Whatever you do, do it a hundred times," he said, as he rapidly opened and closed his massive paws into fists. "every day. Then you will be strong. Just one hundred times. Okay, good."
Just as quickly as he came he was gone, back to teaching the black belts.
Later, outside in the Florida sun, we were taking photos with him and with students from our respective countries and I passed out from the heat. A fellow karateka happened to be a paramedic and helped me inside to safety. I collapsed on a patch of floor off to the side of the stairs and he helped me start my IV pump. It became apparent that I had worried Higaonna-Sensei because he came to me when he was through with photos, an entourage behind him, to see if I was recovering okay. When he saw that I was in good hands he gave me two thumbs up and went on with his day.
It isn't easy to be "the one in the wheelchair." It can feel like I'm getting extra attention I don't deserve, and like I'm taking away from other students. Someone's I just have to be humble about it, other times I have to fight for it to get my own needs met. It's important for the instructor to be aware of your needs, especially in matters of safety, but also in matters of equally access.
Higaonna-Sensei teaches so many people that he can't possibly get to know all of us. And yet, he took much time to meet with me, to talk with me, and he even asked Nakamura-Sensei to take a picture of us so I would have one. "You look like you are having fun, I see you smiling when you practice," he said.
How I wish I could see him again. I wish he could see how much stronger I am. I wish he could know all that my Sensei has done for me, how Goju Ryu has changed my life, thanks to his proliferation of the practice.
We only get so much time on this earth. May we all use it to change and improve lives.
Friday, October 28, 2016
Tiny Hero Takanao Mahiro, Shotokan Karateka
Tuesday, March 15, 2016
Shisochin, The Great Ankle Biter
https://youtu.be/ejQ-KyRTvEU
My ankles aren't happy. It's like I can feel every booboo I've ever had. This kata and I are going to become good friends and I'm going to learn how to use my legs better.
My last PT showed me how to modify my gait and it may be applicable here. Because I have Pes Planus (flat feet), my feet pronate (turn inward). That puts valgus (inward) stress on my knees. As long as I turn my feet out a little bit more when I walk it widens my gait and reduces that valgus stress.
The footwork in Shisochin kata is 99% zenkutsu dachi, a long stance which puts a great deal of stress on the ankles. I couldn't do a single stance without my metatarsals separating, so I'm going to have to modify it.
Here's the thing about modifying moves: Mark Twain advised that we learn the rules, then break them. Zenkutsu dachi is one of the stances I struggle to master because it's big and it's painful. However, it's going to take getting this stance right to learn what I truly can do, so that I only adapt what I truly cannot do safely.
More research will be necessary! It's exciting! Still, at this point in the discovery process it's pretty painful, it would be nice if I could sleep. :)
Be well.
Friday, January 22, 2016
Talkin' 'Bout (the Circle of) Willis
The Circle of Willis is a series of arteries connecting critical feeds of blood to the brain. When a connection like this is created in the body--whether it developed that way or was created--it is called an anastomosis. An example of a synthetic anastomosis would be if someone had a section of intestine removed, and the two remaining sections were joined together.
In the Circle of Willis there are smaller arterial sections that would allow certain sections of the brain to be fed at least a little bit by arteries that wouldn't normally be tasked with doing the job, in the event of a failure like a stroke or other trauma. Smaller segments within the Circle of Willis are fed by the internal carotid arteries and the vertebral arteries. The internal carotid arteries are split off from the carotid arteries.
Here's a video. If anatomical terms aren't your thing, just watch as the video highlights where the blood goes.
We always talk in martial arts about protecting your face. Keep your hands up. Protect your jaw. Keep your chin slightly tucked. But all we say about the back of the head is not to let anyone get behind you. We know it's important not to get hit in the back of the head, or in the spine. Perhaps a lot of us would get psyched out if we all knew how catastrophic any blow can be.
Some of the people I support at work have survived a traumatic brain injury. Knowing the science behind their situations may not be at the forefront of my work with them in rehabilitation, but it does help me to be compassionate about what they may be going through, because I know what is damaged and why. I also know more about what can be rehabilitated and what can't. Because I am not a neuroscientist I cannot allow my novice understanding of anatomy to impact the recommendations I make, but it can help me ask better questions of those who are qualified to provide better information, and /that/ can improve my outcomes.
In karate, I use my knowledge of anatomy and physiology--and my knowledge about how my body breaks so many of those rules--to learn, grow, and adapt. When I know how serious a consequence can be, I know to sit out. Knowledge is power, and as Uncle Ben said in "Spider Man," "With great power comes great responsibility."
Last night I made it to karate and I'm glad I did! I did my first successful groundwork. It feels good to have studied anatomy and physiology. It feels incredible to see it in action. Best of all, it feels sublime to watch my lawless body doing what other bodies can do.
There are so many factors involved in success as a martial artist: how my body is built; how bodies are supposed to work; how bodies don't work; how bodies can be improved; how bodies can degenerate; how adaptions can be made; how practices can be improved; and so on, that it makes sense to say that karate is a cradle-to-grave activity.
The body has a lot of little fail-safes like the Circle of Willis. I enjoy learning about those redundancies, and I think it's a worthwhile use of study time because it also reveals the vulnerabilities.
Saturday, January 16, 2016
How Can I Do Karate?
EDS makes a person self-conscious. EDS does not have to make a person self-conscious. EDS does not deserve to make me self-conscious, because I am a Titan. Better still, I am a karateka. One is fictional, and one is not.
My blood pressure has been crashing to scary-low numbers, so I have been eating bouillon cubes to keep my blood pressure up. Chicken bouillon cubes. Normally I just drink the broth, delicious and sensible. But broth means volume, and volume means vomit. So, while my guts aren't Barfatron Central, I don't want to do anything to rock the boat and start the gastric spin cycle over again. My aid has been working with me to organize small meals that are what the medical field calls "nutrient-dense," but foods that are low-volume and easy to keep down. The easy solution seems like one would write a list of foods that stay down, and work from that. While that's a sound start, gastroparesis doesn't work that way; at times it doesn't matter what your intake, your output will always come out in the wrong direction, and you'll just have to have a little mercy for the fact that biology still has many mysteries.
My friend asked me, "How can you do karate with your health?" First I came up with a very fancy, clinical answer, then I came to my senses:
It's quite incredible, really. I have strict rules with my Sensei about every little thing: where is the best place to keep water and medical supplies, where to stand in front so I can lipread, how long to bow out for care and recovery. I only work with black belts, as they have the best control over their flying limbs. I keep my promise to take a break when I honestly need to. If I need to drop to my knees and finish a drill that way, or on my back, I can. As long as I keep doing whatever I can do, I get to play the reindeer games. :) When my legs don't work and everyone's kicking, I do punches that are similar to the kicks. Usually I'll do a few rounds of each drill as best I can, and then adapt when I know I'd peter out if I were to continue. Certain things are off limits, like being dragged around by my head, or certain conditioning that is deliberately intended to damage nerves. If it's not something I can adapt I just politely bow out and people reshuffle. I have a hiking backpack that I can secure well to my back while I'm exercising if need be, as well. Sometimes I'll do that, sometimes I'll just crawl to the floor next to the bench, put my feet up to push blood back to my brain, and work with my arms.
You know what? The real answer to your question isn't what I just wrote. The real answer to your question is that everybody supports me and adapts with me. Not even once have I been given a hard time for not being able to keep up. I have asked myself a thousand times whether I really deserve the belt I have. The answer is that I do, and I don't know anybody who would be able to perform like I do if they had my challenges. It's because of my dojo, that's how I am able to do karate.
His response:
I love both your answers to my question - particularly the second. "Everybody supports me and adapts with me" pretty much sums up the ideal society, whether it's a dojo or a nation. In a culture that reifies "individualism", it's great to know the community still has a place. And frankly, I think this is good advice for anyone: "Nobody drags me around by my head".
I also love your blog. More precisely, I love your love. It makes your life rich and full, and makes people like me want to be your friend.
That's a pal.
This morning I missed karate because of exhaustion and pain. But sleeping until 2pm seems to have given me a little energy to care for myself, and to refresh my brain. I'm not going to miss karate forever, and I'm starting to forgive myself for the absence, because every move I make is aimed at getting me back there, while doing good works in the meantime. I'm working on projects and learning new skills, which is working for me. Additionally, although I'm not ready to do drills, I still do juunbi undo (warm-ups), read Higaonna-Sensei's books, and study my kata. Today the class was not to be. Tuesday I'll try again. Twice a week is the target, but once a week may have to do for now.
Karate is not something you study on your own, you need a community. My Sensei has given me a worldwide community to learn with and connect with, including some people like me! My dojo is right here in my neighbourhood, and my community at large is just a few keystrokes away. This is good for me, and I'll keep at it, looking forward to returning as soon as possible.
Be well.
Sunday, December 27, 2015
Deep Breathing and Protecting the Airway
Place three fingers right at the tip-top of your sternum, just inside of where your collarbones end. Now, gently turn your head from side to side. When you feel your fingers move, you've found one of the points where your sterno-cleido-mastoid muscle (SCM) begins! The other is just a little bit farther out to the side, attached to the innermost third of your collarbone. It's a muscle that helps with rotation of the head, and also lowering the head, among other things. This tiny muscle is the HULK! Stick with me; knowing anatomy can help your practice, and can rock your sparring like a hurricane.
Why is this beautiful?
Life has created an incredible tool for itself!
The SCM is a muscle that:
- Connects to two different body parts
- The sternum, which holds your ribs together. That means the SCM is one of many muscles holding your rib cage in place so it doesn't tilt forward. Imagine what this means for big-chested people: the SCM connects at the back of the neck, the Emerald City gates of all neurological function. No wonder a breast reduction has serious beneficial implications on pain management.
- Changes direction
- Most major muscles have a "1 or 0" way of working. The simple bicep either contracts or it doesn't. The SCM is a muscle that everybody takes seriously. A little injury can cause a lot of trouble.
"And though she be but little, she is fierce."
-William Shakespeare, A Midsummer Night's Dream
- Facilitates movement in many directions
- Lateral rotation of the head (side to side)
- Turning to follow the opponent
- Rockin' your very best kata
- Flexion of the head (up and down)
- Bending your head down to protect your airway
- Lifts the rib cage
- The SCM does part of the work of lifting the rib cage up so that you can take a deep breath, the kind that goes to your abdomen and makes you feel really good.
- Sanchin Kata
- Tensho Kata
- Tai Otoshi (body drop)
It's interesting that we have large sheets of muscle on the tops of our skulls because those bones are fused. One would think it would be thick connective tissue, although there is plenty of that, too. From my inexperienced perspective, the explanation may include that the muscles of the skull help facilitate developmental fusion of skull segments in babies, or working connection with the facial and jaw muscles. I've got to be missing something, though.
http://www.innerbody.com/image_musfov/musc38-new.html#full-description
When I was studying medicine I had a place for these ruminations to go. Since I won't likely become well enough to continue my studies, I'm grateful that karate provides an outlet for my thoughts on anatomy and physiology (A&P). Ehlers-Danlos Syndrome (EDS) is a giant anomaly of A&P, but because I live with it at all times it isn't the healthiest place to nest all my curiosities. The lens of having EDS also produces distortions and bias, whereas karate is practiced and studied by a diverse population, and provides for more well-rounded thinking.
This whole post is a little heady (*snicker*) for a Sunday morning, but still fascinating to think about!
Saturday, September 26, 2015
Adapting Gekisai Dai Ni Kata
https://youtu.be/0Uydn4yEXe4
Gekisai Dai Ni is my hardest kata. It's extremely hard on my joints because of the rounded techniques, which take place on all three planes of motion: coronal, sagittal, and transverse.
For Ehlers-Danlos Syndrome, movements on one plane of motion are best. Movements on two planes of motion are okay. Movements on three planes of motion are a no-no because they most strongly force the joint into a closed-pack position, with the highest congruency. In plain English, they mash the joint into its socket or capsule the most tightly, which gives it lots of opportunities for the stabilizing tissues to snap, tear, break, sprain, and so on.
Coincidentally, in a hypermobile person, a position at the end ranges of motion, with the most joint congruency, is often the most comfortable: everything is as tight as it can get. Many EDSers enjoy sitting with our legs contorted in unusual positions because, if we pin our legs down as far as they can go in any direction, we at least know where they are, and that they're tight. It gives a false sense of hope that our limbs will stay put. Over time, repeated activity at the end-range of motion will lead to further laxity and weakness. Then, when we need to do normal things in more reasonable ranges of motion, we fall apart easily and don't know why. (Well, now you know why.)
All kata in Okinawan Goju Ryu Karate feature rounded movements ("tripled" movements, when referring to planes of motion). It's one of our fundamental ways of moving, and for some applications it is indeed the most stable and effective.
With EDS, I reduce a lot of my dislocations by simply reducing my range of motion to five degrees fewer than the average person would move (which is 15-20 degrees fewer for me, and I'm EDS Classical Type, not even Hypermobile Type). It took six months to learn to walk this way, and six years to learn to live this way.
In karate, I reduce my stances, especially Sanchin-dachi (Three Battles stance), by just a few degrees. I have three goals with my stances:
1. Don't dislocate
2. Get the same functional outcome
3. Get the same aesthetic outcome
There are times when, curiously, I lose control of my legs. I can be standing, but unable to move. My fellow karateka will sometimes remind me what to do or encourage me to take the next step because the delay is very noticeable, but I'm stuck! EDS is given to neuropathy and radiculopathy, but I've never seen research on momentary paralysis. (Perhaps it's a Chiari-I Malformation thing. I haven't jumped down that rabbit hole of research because I don't have it yet.) I finish the exercise and then take a break. Lack of control of major muscle groups is at least a sign of fatigue.
For upper body movements I have the same goals with my thumbs, shoulder blades, and wrists. It's even harder with my upper body and I stand a good chance of being sore in the clavicles and ribs for weeks if I ignore those goals. It can interrupt my breathing, and make me even more susceptible to blacking out. I'm getting pretty good at managing it, though. I keep my knees bent and my eyes open until my vision comes back. I don't fall over anymore.
Gekisai Dai Ni is my hardest kata. I took second place in a tournament two days ago, but popped my ankle in the middle of the first neko ashi-dachi (cat stance). Stupidly, I finished the kata, because I didn't fall over, and my head was in "the zone." When I stepped on my busted ankle for the second neko ashi-dachi, I knew I'd made a big mistake. I took care of it immediately after.
My ankle already been coming loose for days and I ignored it, since that's not uncommon. Rookie mistake. I was so pumped for the tournament that I didn't pay attention to my body, and that's where I went wrong. I splinted the next day, but the pain crept up into my knee and hip, so that the whole leg was wrecked by Saturday morning. I missed out on Spirit Training and the karate family Potluck, both of which are highlights of my entire karate life. Instead I'm in bed with my leg elevated, blogging about planes of motion.
For some joints I've learned to finish kata with a dislocated joint, and put the joint back in place later on. It just pops out again if I stop and try to fix it in the middle of a kata. My fellow karateka are used to hearing me popping bones around, so they don't freak out, which is great for my emotional health.
Gekisai Dai Ni is my hardest kata. I need to practice it. I need to modify it and practice that. I could always ask for a different kata, but I want to master it in my own way, even--especially--if I can get through it with adaptation. That's the name of the game.
The best part about my second place ribbon is that the person who took first place has been working very hard on his performance, and he's worked with me on kata a lot! He deserves that blue ribbon, and I'm proud to take second. What a great memory, to compete next to someone who has worked so hard, and for much longer than I have!
Be well.
Friday, August 14, 2015
Some Nightmares Come True, So Do Some Dreams
Saturday, July 18, 2015
When It Gets Tough
Doubling over in full spasm may make it seem like I did my best in karate, and maybe I did! But I missed a cue somewhere that it was time to stop, so I will work on it! It's hard to know when something like that is a one-off or if there's something wrong with what I'm doing.
Since achieving my 4-kyu karate has gotten particularly hard. It used to be challenging, now it's hard. My skin tears open, my feet get shredded from movement, and I am so tired after class that I have to go right to sleep when I get home. But I'm satisfied with my effort, I've had a healthy amount of social interaction, I've had fun, and I fall asleep happy.
Even though I seldom get through a class without breaks I love to be there, and I look forward to going. To manage the pain I take breaks to stretch, manage pain, and hydrate. This morning I had taken a stretch break, and perhaps it would have been better if I had stayed on the bench afterword, but I ask myself, how am I to improve if I don't challenge my boundaries?
Testing boundaries is something we all do from the time we are little and we learn the word "no." The way I grew up, everything was a boundary, the boundaries moved, and it was dangerous to cross those boundaries. The only residual part of that muss with EDS is that the boundaries change, relative to my health that day. But some of the fights and stamina exercises are starting to remind me of those days. It's an opportunity to let those feelings come up and to work through them in a safe and positive environment. However, working with a counselor helps me unpack those memories, so I don't have to worry about sorting them out during a workout. I can acknowledge that they're there, make a mental note to process the memories later, and get back to my exercise. A lot of people start karate because of a traumatic past, whether it be ongoing abuse or an isolated event. It's important to keep those feelings in check because they can make you vulnerable or distract you. I keep it simple by telling myself those are yesterday's feelings, and then I take a second to connect with today's feelings, all infinitely more enjoyable.
My feet and ankles hurt a lot in class. I stop often to put bones back in, or to give them a break. I try not to let it interfere with my kata, and I work through the physiology of kata movements to see if better precision with foot placement can help. It usually does, much to my delight!
Breakfalls are still scary. I think strategically about whether or not to let my partner drop me to the floor, and most times they do so very gently. I haven't thought of safe ways to practice falling, but I'll come back to it.
I'm not worried that I won't be able to get to a black belt level. I'll work hard on the technical aspects and do everything I can to maximize my moves. That will take practice, my meds put me into a stupor, and I can't always decide which move to do next. But I think I'm at the proper level at which anybody with my rank would be if they had my challenges, and I trust my Sensei's judgement. He wouldn't promote me if I didn't belong in that rank because it would be unfair and unsafe. We don't work that way in my dojo; egotistical risks are rightly frowned upon.
My greatest ally is my Sensei, of course. With all of this, he is well aware of my situation and he has an incredible way of helping me through. Not once has he ever cut me down, complained, or yelled at me for not being able to do something. If I bring it up he says to just keep coming. He never makes a big deal of it, and it's never been a big deal. I need that. I need a place where my health is not going to cause a big ruckus that comes down on my head unexpectedly. My whole karate family is great about it.
Not the best blog post, but it's where I am at the moment. Other than that, food is staying down thanks to Phenergan and I've got a little bit of energy back. I just need to keep eating, which I never want to do. But if it helps my karate, I'm in. :)
On my way out of the dojo today one of our teens held the door for me and said, "Good job today." Then I knew that I was on the right track. I love working with our teens. Every time I see them I greet them with genuine enthusiasm and eye contact. They've all picked up on it and they now return the gesture. I love it! They are all working hard to grow into good people, and though my part in that is small, I'm thrilled to have one. They brighten my life, and that's one of the million reasons I love karate!
Be well.
Monday, July 6, 2015
Back In Action!
It's been seven years since I began refluxing everything that I ate or drank. I'll spare the details, but it's been a long road. I'm finally getting some answers, or at least a working diagnosis, which is better than having them throw handfuls of pills at me in ill-conceived, but well-intended, attempts at controlling the emesis.
When I read my own descriptions of what I'm going through this sound awfully severe. I've learned to get through it without really noticing, which probably makes it more tolerable. However, in karate we are challenged to face what is hard for us and to gain control of the situation. On some level, it is important that I stay aware and reflect on how my body is changing so that I may take good care of it.Tonight was the first night I got back to the dojo! It was very exciting, I get like a little kid! Karate is the thing to which I most look forward, and some people don't look forward to anything as much as I look forward to karate. I let myself appreciate it with every possible ounce of joy that I am capable of feeling.
My goal tonight was to get through warm-ups. Strategically, I had plans to manage my participation by restricting it to half of what I was asked to do. Imagine my delight when I figured out that a month off from karate has given several joints time to heal, increasing my performance! I did rest, but I also pushed myself. I feel great about it!
It's hard to know when to push and when to rest. There are so many benefits to be gained from both, and just enough danger in too much of either to keep me circumspect. This was a constant problem in physiotherapy. At some point my physiotherapist intimated that she had stopped trying to guess what was wrong, and jumped straight into helping me recover. That little bit of information has been quite useful, in that, I am finally using less brainpower to find the source of problems, and allocating that headspace to resolve, recover, and adapt.
One might consider me a highly sensitive person. As such, it can be so overwhelming go through my body's changes that I somehow detach from having feelings about it, just so I can get through it. That may not be a bad thing, because much of it is a sense of loss about which I can do nothing but grieve. Maybe grief will be useful later, but I don't see it helping me right now. Hopefully it won't creep up on me!
Tuesday, June 23, 2015
On Femaleness and Flight
I've never met Marchant-Sensei, but from what I've read of her life and times she is a Dame of ever there were one. I'm grateful to be a part of IOGKF, humbled to share a /mon/. There will always be cups for tea at my table for her.
Linda Marchant-Sensei is the highest ranking female karateka in IOGKF. She had a high-paying job in the UK, and left it behind to pursue her passion as a martial artist. She succeeded, too. Like every rounded pebble that tumbles over Niagara Falls, you don't become so well rounded without tumbling a long way, getting knocked around and bumped, before becoming just as smooth as the waters that carry you through time.
On the other side of this thought trail stands a fellow karateka in my dojo, a /Senpai/ to me, also dedicated beyond compare. An artist, she studies the body in total, learning to read every curve and arch, working in the dojo to see how those angles change and shape the /gi/ which shroud the figures inside. She is so young to carry this largesse of curiosity, with shoulders already conditioned to bear such weight on a very thin frame. She could remind us all that "thin" and "frail" are not synonyms.
The feminine side of karate is so often characterized by a white crane. To stand before a white crane demands respect for every such creature that ever put itself through the rigor to learn to fly.
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These days it is impossible to say just what I mean. As I continue to fight nausea, pain and fatigue, my feelings and thoughts have the impish drive to swell in my head and demand to be known. I have only a fraction of the energy I need to host them all, barely enough. My blog posts may be short for a time but I will continue writing them. It makes me sad to report that I'm still sick. Even though Ehlers-Danlos Syndrome is a cradle-to-grave companion it is still very much unwelcome.
This is a tournament week. I'll harden my thoughts to the point that, even if I don't fight this time, I truly have yet to spread my wings. I must believe that old axiom that says, "the best is yet to come," because I am nowhere near as fierce as I shall be when I finally fly. If femaleness of what I've got to work with, then truly, I am in the downy company of the finest flock.
Be well.

![[Image: a river bank in Japan with trees in the foreground and a stone lantern in the background. Colours are different shades of green under a mid-day overcast sun. Text in picture: "Karate becomes a sport when those who are teaching it forget that it is an art." -Karate Viewpoints]](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhlAweccvwkQkq6xCNhskODuXyLTTRTxGSddnmtLYO2BTR75Q4dRnoUyVglPGpf_tEwT-RYwOSL-Xa9VMBGafauUHd2MR92lcTxOfm0jKtZv-lU6p8kAbE8K9Xgfmwiw_HOyTNVwQlYyeC3/s320/22310513_1585122531544529_7749275626579149361_n.jpg)
