Goju Ryu Karate with Ehlers-Danlos Syndrome and Multiple Disabilities
Wednesday, November 19, 2025
Karate Potty
Monday, October 13, 2025
Life Off the Vent
Monday, September 27, 2021
On Karate, Pants, and the Flow of Teachable Interventions
Wednesday, September 9, 2020
Zooming In On My Progress
Online learning is getting to me. In karate tonight over Zoom I tried Sepai kata for the first time. I miss my dojo. It'll be interesting to see how my body tolerates karate with no port and overall reduced activity after the pandemic ends. I look forward to building back up because looking back won't do me any good.
I've been in physiotherapy for a year and a half now since sepsis ended. I've been out of the dojo since before the pandemic hit the United States, where I live.
Learning karate online has been a lot of fun because it's different and I get different things out of it. I can turn the volume way up on my Sensei's voice, for instance, whereas in the dojo I'm almost totally deaf. Learning online I can write notes down and scribble out my questions and their answers. I can rest, add a fan, hydrate, and manage blackouts more easily. The cats are distracting but that's only because I want them to meet my dojo family.
It's frightening that my body has deconditioned in so many ways because of sepsis. My muscle memory is carrying me further than my actual memory in some cases, and in other cases I'm choked up from drawing a blank.
My Sensei is extremely generous with my schedule and my abilities. He has things he wants for me and I have things I want for myself. At the end of the day we're glad to be alive and we have faith that this is the foundation for anything else we can imagine to come true. :)
Sepai, though, which is thought of as the oldest kata, has a lot of moves in it that are new to me. It looks like Sepai bunkai might be easier to perform than the kata itself (at least, kihon bunkai).
I'm frustrated most moments of the day with the pain, which is a lot worse, a lot sooner. Pain control in the U.S. is a strange racket. With Ehlers-Danlos Syndrome it is unrealistic to expect that one may ever be completely out of pain. But it is realistic to expect that I can learn to defend myself. I don't need every kata to be lovely. I don't need every bunkai to work. I need to practice and ingrain a few solid techniques that will work for me in different situations against different types of people. I choose to see my life as worth defending. There are many people in my life I wish saw themselves that way, but I can only control myself and invite others to join me in the adventure, in the work. And boy, is it work.
Eventually, everyone gets seasoned at working toward or fighting for something, so long as we do not give up and check out. And even that is another type of fight altogether worth besting.
Sunday, August 9, 2020
Saifa Kata and the Clavicle Strikes
Wednesday, May 6, 2020
In Defense of Self
Saturday, June 22, 2019
Tai Sabaki and Shifting Directions
Tai sabaki is a shift but it is not a final destination, you have to keep moving.
PT didn't clear me for karate this week so I'm watching videos of Higaonna-Sensei. My goal is to find one physiotherapy modality that will help me develop the functional muscle movements and stability to perform one thing a little better than before.
My focus has landed on tai sabaki, body shifting, which can also be translated as body management. Defensively, tai sabaki is used to move quickly out of the way and often includes facing a different direction.
Since my last three hospitalizations I've had to dramatically switch directions in my life. Switching directions shifts one's vantage point, which allows for refocusing. In fact, it requires refocusing, if you're going to get anything done. Tai sabaki is a shift but it is not a final destination, you have to keep moving.
The hips drive tai sabaki. The more stable your core, the better the control. Faster, stronger, easier, smarter. Less easily fatigued. More readily engaged.
PT has been incredibly hard and slow to progress. I feel less likely to fall but I'm still too weak to do a number of functional tasks. For instance, I can't go out to buy groceries and then also put them away when I get home. It has to be done in steps with rest in between.
With tai sabaki you have to stay relaxed, "not too busy", as Higaonna-Sensei explains it. If you get anchored down you can't move or change when you need to. My PT is good at changing directions and finding new approaches. It's not easy work to manage my frustration when a task doesn't work out; a quick shift of focus keeps my time in PT productive and developmental, even if it's not the original task I set out to accomplish.
The goal is to get through, not to land a particular punch. That's why you have to be able to shift, and to practice all different kinds of things. A little at a time, all those little efforts add up to the win.
https://youtu.be/8Ru-fQ10c3Q
Recently I had a nurse evaluation, one of many. "Staying alive, is that what your goals are with your doctors right now?" she asked. Yes, that's the primary goal right now. But it's leveling off and the shift is toward recovery and functional goals for Activities of Daily Living (ADLs). Karate isn't on the list as a method right now, even though it involves exercise. But that doesn't stop me from asking for clearance to go each week. That's the direction I want to be facing, even if I have to shift now and then.
Sunday, August 19, 2018
The Myth of "Not In My Dojo"
Abuse happens everywhere, and it seems particularly rampant in the church and in sports. I will do my part to be informed and aware.
Saturday, August 26, 2017
Push The Bag
We do an exercise with the little kids where they have to push the bags. We adults hold kick shields in front of us, the kids have to push us up and down the dojo. When they "get stuck" (i.e., we resist), we encourage them and laugh with them, or gently cajole them, whatever they need. When we make huge progress (i.e., we take several steps backward so they feel like they got a really strong push) we celebrate and congratulate.
Push The Bag one of the more time-consuming activities, but it's easily one of my faves because we are encouraging them the whole time, no matter what happens.
We encourage one another in the dojo no matter what happens. It just so happens that during Push The Bag we get to do a whole lot of it, one-on-one, which really improves our relationship with that one child. It's special to me.
Nothing big and profound today to write about, just this nice thing.
Friday, October 28, 2016
Tiny Hero Takanao Mahiro, Shotokan Karateka
Saturday, January 16, 2016
How Can I Do Karate?
EDS makes a person self-conscious. EDS does not have to make a person self-conscious. EDS does not deserve to make me self-conscious, because I am a Titan. Better still, I am a karateka. One is fictional, and one is not.
My blood pressure has been crashing to scary-low numbers, so I have been eating bouillon cubes to keep my blood pressure up. Chicken bouillon cubes. Normally I just drink the broth, delicious and sensible. But broth means volume, and volume means vomit. So, while my guts aren't Barfatron Central, I don't want to do anything to rock the boat and start the gastric spin cycle over again. My aid has been working with me to organize small meals that are what the medical field calls "nutrient-dense," but foods that are low-volume and easy to keep down. The easy solution seems like one would write a list of foods that stay down, and work from that. While that's a sound start, gastroparesis doesn't work that way; at times it doesn't matter what your intake, your output will always come out in the wrong direction, and you'll just have to have a little mercy for the fact that biology still has many mysteries.
My friend asked me, "How can you do karate with your health?" First I came up with a very fancy, clinical answer, then I came to my senses:
It's quite incredible, really. I have strict rules with my Sensei about every little thing: where is the best place to keep water and medical supplies, where to stand in front so I can lipread, how long to bow out for care and recovery. I only work with black belts, as they have the best control over their flying limbs. I keep my promise to take a break when I honestly need to. If I need to drop to my knees and finish a drill that way, or on my back, I can. As long as I keep doing whatever I can do, I get to play the reindeer games. :) When my legs don't work and everyone's kicking, I do punches that are similar to the kicks. Usually I'll do a few rounds of each drill as best I can, and then adapt when I know I'd peter out if I were to continue. Certain things are off limits, like being dragged around by my head, or certain conditioning that is deliberately intended to damage nerves. If it's not something I can adapt I just politely bow out and people reshuffle. I have a hiking backpack that I can secure well to my back while I'm exercising if need be, as well. Sometimes I'll do that, sometimes I'll just crawl to the floor next to the bench, put my feet up to push blood back to my brain, and work with my arms.
You know what? The real answer to your question isn't what I just wrote. The real answer to your question is that everybody supports me and adapts with me. Not even once have I been given a hard time for not being able to keep up. I have asked myself a thousand times whether I really deserve the belt I have. The answer is that I do, and I don't know anybody who would be able to perform like I do if they had my challenges. It's because of my dojo, that's how I am able to do karate.
His response:
I love both your answers to my question - particularly the second. "Everybody supports me and adapts with me" pretty much sums up the ideal society, whether it's a dojo or a nation. In a culture that reifies "individualism", it's great to know the community still has a place. And frankly, I think this is good advice for anyone: "Nobody drags me around by my head".
I also love your blog. More precisely, I love your love. It makes your life rich and full, and makes people like me want to be your friend.
That's a pal.
This morning I missed karate because of exhaustion and pain. But sleeping until 2pm seems to have given me a little energy to care for myself, and to refresh my brain. I'm not going to miss karate forever, and I'm starting to forgive myself for the absence, because every move I make is aimed at getting me back there, while doing good works in the meantime. I'm working on projects and learning new skills, which is working for me. Additionally, although I'm not ready to do drills, I still do juunbi undo (warm-ups), read Higaonna-Sensei's books, and study my kata. Today the class was not to be. Tuesday I'll try again. Twice a week is the target, but once a week may have to do for now.
Karate is not something you study on your own, you need a community. My Sensei has given me a worldwide community to learn with and connect with, including some people like me! My dojo is right here in my neighbourhood, and my community at large is just a few keystrokes away. This is good for me, and I'll keep at it, looking forward to returning as soon as possible.
Be well.
Sunday, December 27, 2015
Deep Breathing and Protecting the Airway
Place three fingers right at the tip-top of your sternum, just inside of where your collarbones end. Now, gently turn your head from side to side. When you feel your fingers move, you've found one of the points where your sterno-cleido-mastoid muscle (SCM) begins! The other is just a little bit farther out to the side, attached to the innermost third of your collarbone. It's a muscle that helps with rotation of the head, and also lowering the head, among other things. This tiny muscle is the HULK! Stick with me; knowing anatomy can help your practice, and can rock your sparring like a hurricane.
Why is this beautiful?
Life has created an incredible tool for itself!
The SCM is a muscle that:
- Connects to two different body parts
- The sternum, which holds your ribs together. That means the SCM is one of many muscles holding your rib cage in place so it doesn't tilt forward. Imagine what this means for big-chested people: the SCM connects at the back of the neck, the Emerald City gates of all neurological function. No wonder a breast reduction has serious beneficial implications on pain management.
- Changes direction
- Most major muscles have a "1 or 0" way of working. The simple bicep either contracts or it doesn't. The SCM is a muscle that everybody takes seriously. A little injury can cause a lot of trouble.
"And though she be but little, she is fierce."
-William Shakespeare, A Midsummer Night's Dream
- Facilitates movement in many directions
- Lateral rotation of the head (side to side)
- Turning to follow the opponent
- Rockin' your very best kata
- Flexion of the head (up and down)
- Bending your head down to protect your airway
- Lifts the rib cage
- The SCM does part of the work of lifting the rib cage up so that you can take a deep breath, the kind that goes to your abdomen and makes you feel really good.
- Sanchin Kata
- Tensho Kata
- Tai Otoshi (body drop)
It's interesting that we have large sheets of muscle on the tops of our skulls because those bones are fused. One would think it would be thick connective tissue, although there is plenty of that, too. From my inexperienced perspective, the explanation may include that the muscles of the skull help facilitate developmental fusion of skull segments in babies, or working connection with the facial and jaw muscles. I've got to be missing something, though.
http://www.innerbody.com/image_musfov/musc38-new.html#full-description
When I was studying medicine I had a place for these ruminations to go. Since I won't likely become well enough to continue my studies, I'm grateful that karate provides an outlet for my thoughts on anatomy and physiology (A&P). Ehlers-Danlos Syndrome (EDS) is a giant anomaly of A&P, but because I live with it at all times it isn't the healthiest place to nest all my curiosities. The lens of having EDS also produces distortions and bias, whereas karate is practiced and studied by a diverse population, and provides for more well-rounded thinking.
This whole post is a little heady (*snicker*) for a Sunday morning, but still fascinating to think about!
Saturday, July 18, 2015
When It Gets Tough
Doubling over in full spasm may make it seem like I did my best in karate, and maybe I did! But I missed a cue somewhere that it was time to stop, so I will work on it! It's hard to know when something like that is a one-off or if there's something wrong with what I'm doing.
Since achieving my 4-kyu karate has gotten particularly hard. It used to be challenging, now it's hard. My skin tears open, my feet get shredded from movement, and I am so tired after class that I have to go right to sleep when I get home. But I'm satisfied with my effort, I've had a healthy amount of social interaction, I've had fun, and I fall asleep happy.
Even though I seldom get through a class without breaks I love to be there, and I look forward to going. To manage the pain I take breaks to stretch, manage pain, and hydrate. This morning I had taken a stretch break, and perhaps it would have been better if I had stayed on the bench afterword, but I ask myself, how am I to improve if I don't challenge my boundaries?
Testing boundaries is something we all do from the time we are little and we learn the word "no." The way I grew up, everything was a boundary, the boundaries moved, and it was dangerous to cross those boundaries. The only residual part of that muss with EDS is that the boundaries change, relative to my health that day. But some of the fights and stamina exercises are starting to remind me of those days. It's an opportunity to let those feelings come up and to work through them in a safe and positive environment. However, working with a counselor helps me unpack those memories, so I don't have to worry about sorting them out during a workout. I can acknowledge that they're there, make a mental note to process the memories later, and get back to my exercise. A lot of people start karate because of a traumatic past, whether it be ongoing abuse or an isolated event. It's important to keep those feelings in check because they can make you vulnerable or distract you. I keep it simple by telling myself those are yesterday's feelings, and then I take a second to connect with today's feelings, all infinitely more enjoyable.
My feet and ankles hurt a lot in class. I stop often to put bones back in, or to give them a break. I try not to let it interfere with my kata, and I work through the physiology of kata movements to see if better precision with foot placement can help. It usually does, much to my delight!
Breakfalls are still scary. I think strategically about whether or not to let my partner drop me to the floor, and most times they do so very gently. I haven't thought of safe ways to practice falling, but I'll come back to it.
I'm not worried that I won't be able to get to a black belt level. I'll work hard on the technical aspects and do everything I can to maximize my moves. That will take practice, my meds put me into a stupor, and I can't always decide which move to do next. But I think I'm at the proper level at which anybody with my rank would be if they had my challenges, and I trust my Sensei's judgement. He wouldn't promote me if I didn't belong in that rank because it would be unfair and unsafe. We don't work that way in my dojo; egotistical risks are rightly frowned upon.
My greatest ally is my Sensei, of course. With all of this, he is well aware of my situation and he has an incredible way of helping me through. Not once has he ever cut me down, complained, or yelled at me for not being able to do something. If I bring it up he says to just keep coming. He never makes a big deal of it, and it's never been a big deal. I need that. I need a place where my health is not going to cause a big ruckus that comes down on my head unexpectedly. My whole karate family is great about it.
Not the best blog post, but it's where I am at the moment. Other than that, food is staying down thanks to Phenergan and I've got a little bit of energy back. I just need to keep eating, which I never want to do. But if it helps my karate, I'm in. :)
On my way out of the dojo today one of our teens held the door for me and said, "Good job today." Then I knew that I was on the right track. I love working with our teens. Every time I see them I greet them with genuine enthusiasm and eye contact. They've all picked up on it and they now return the gesture. I love it! They are all working hard to grow into good people, and though my part in that is small, I'm thrilled to have one. They brighten my life, and that's one of the million reasons I love karate!
Be well.